Friday, January 13, 2017

Why the Affordable Care Act isn't Affordable

I will be first to say healthcare is too expensive for consumers. When I had to go searching for a plan in November because my prior insurer stopped covering individuals, I was angered, frustrated and nearly brought to tears at the reality of my options. The plan I have is more expensive each month than my mortgage and that excludes the deductible of $6,000.
In my lifetime, I have participated in many forms of healthcare coverage or lack of coverage. As I child I was covered under AFDC or Aid For Dependent Children (welfare). I experienced the embarrassment of having two ugly eyeglass frames to choose from at age 12 when I needed glasses because those were the only ones covered and my single mom couldn’t afford anything else. Braces? No way, but the orthodontist was so concerned about how badly my teeth were configured he wrote a letter of appeal to the powers that be and got partial coverage. He generously offered the rest of the service gratis. I was grateful, but embarrassment and guilt left a sting that made me determined to work hard to be dependent on myself, rather than the generosity of others.
As a college student, I had no insurance and used Planned Parenthood for any care I needed because they took payment on a sliding scale. This amounted to yearly exams, birth control pills and treatment for an occasional sore throat or sinus infection. I was so grateful to have basic care that I could afford as I struggled to get the education that would make me independent. I had insurance coverage as soon as I began working in the hospital and it was reasonably affordable because I was always very healthy.  Fast forward to 2016 and I am self employed and have a cancer diagnosis. The fact that I even have coverage is because of the Affordable Care Act.  Before it, insurance companies could reject me because I had a condition that could get very costly to cover.  This would have meant $250,000 for initial treatment and my basic maintenance every year costs between $30-50,000.  As it is, I am stretching out the length of time between my basic follow and looking for other options because my deductible is so high that a significant amount comes out of my pocket. $2,000 every three months is not affordable to me or my family.  No, The Affordable Care Act, isn’t affordable but let’s take a look at the reasons why. 
Insuring more people costs more money.  The Affordable Care Act, or Obama Care as fellow Minnesota native Michele Bachmann re-titled it, mandated insurance companies could no longer reject people with pre-existing conditions. They had to cover the kid with cancer, the mom with failing kidneys, the priest with Cystic Fibrosis and yes, the smoking COPD patient on a fixed income.  20 million people were suddenly offered insurance coverage that didn't have access to it before, which was great in that the incidence of massive medical debt plummeted and sick people are able to get care before they are critically ill and most expensive to treat.  President Obama was not able to pass legislation to cap profits made by insurance companies because, to my understanding, that violates the free market economy we are so proud of.  This isn’t rocket science, more people getting care means more money going to hospital and healthcare systems who provide that care.
Why the mandates and penalties?  In order to have enough money to cover everyone, the young healthy people (who I used to be), need to be paying the insurance companies too.  It’s not so different from the Social Security System in that the people who are young and strong are supporting the ones who need help and when the young strong ones get old and sick, it is essential there are more young strong ones in the pipeline paying in and so on.  While it may seem wrong or even in opposition to American principles to try to force people to have health insurance coverage, it is the only way to support the huge amount of money that is needed to cover everyone. The money has to come from somewhere. Even these measures weren’t enough to make monthly premiums affordable for everyone so the government added money in the form of subsidies for people within certain income limits.  So, more people who need care are getting care and the majority of American’s are getting help with their monthly premiums.  I think most would agree these are positive outcomes, but wait….
Insurance companies like and are used to, big profits.  The cost to insure all of the sick Americans who they could reject coverage to prior, was higher than even they anticipated so they started rejecting in a way that was allowed, by pulling out of the healthcare exchanges.  I recall many of them stating things like continuing in the exchanges “is not sustainable.” This was especially true when they were covering individuals, like myself, rather than people who received coverage from their employer. With large groups like employers, insurance companies negotiate prices with healthcare providers and systems, that is why there are limitations on seeing physicians “out of network.” That is code for the insurance company hasn’t negotiated prices with those physicians.  They negotiate reduced prices with medical groups in exchange for the large volume of patients or “customers” they provide to that group, a volume discount, so to speak.  This is also why we don’t see anymore small family practice doctors like in the good old days.  I know many physicians who also long to provide that personal kind of care but they can’t compete with large systems and payers. But, I digress, that is another topic for another day. 
Insurance companies are still able to make considerable profits, just not to the degree they could prior to the Affordable Care Act. So, they started to raise monthly premiums, deductibles and co-pays.  A typical deductible (amount our of your pocket before insurance starts paying) for a family used to be between $500-1,000 per year and now have climbed to $6,000-20,000.  That is in a addition to monthly premiums of anywhere from $700-2,500 and co-insurance (percentage not covered by insurance) of 20-50%. While insurance companies complain about higher costs to cover members, their CEO’s are still getting paid multi-million dollar salaries.  I am not saying they shouldn’t be, I am just the kind of person who likes to know the facts when drawing conclusions. 
It is a dilemma to be sure and I agree the current state of healthcare is not sustainable for a variety of reasons. But what is the answer? Do we create a new system where there aren’t penalties and the government kicks in more money so the cost of insurance is more affordable to everyone? This increases our deficit tremendously.  Do reimbursements to healthcare systems diminish and there are staffing shortages and it takes months to get important procedures or treatment? Maybe the government gives money to the insurance companies in the form of massive tax credits but that would essentially be a government supported system and a precursor to the much demonized term “socialized medicine.” What I do know is, the costs of covering sick people in this country are going to sky rocket over the next 20 years and it’s really just a matter of who is going to foot the bill. 

Sunday, January 1, 2017

What Carrie Fisher Taught me About Kindness and Authenticity



I have been fortunate in my life to have had experiences and opportunities that are rare and unique. To have landed in some enviable situations, not because I had a plan to be there or even the imagination to consider it a possibility but more because I had an open call out to the universe. A call to show me things I was certain I missed having grown up in rural Minnesota. To be certain, one of the finest examples of these moments of dumb luck, is meeting Carrie Fisher.
I had just moved to Los Angeles and contacted a local nanny agency looking for a position for the summer, before signing up for classes in the fall. I had experience teaching preschool and had been babysitting everyone in the neighborhood since I was about 12 years old. I had heard that nannies from the midwest were highly sought after so it seemed like the most logical job to try and land. The first interview I was sent on was in Beverly Hills and I was hired on the spot. I was plopped in the midst of A list celebrities and Hollywood producers literally overnight and meeting new ones on almost a daily basis. While this was initially exciting, it quickly became clear that this was not a world I was familiar with or could easily conform to. The starlet I worked for had a habit of instructing me to “get the baby ready” and get in the car without notice or any indication of where we were going. Sometimes it was to buy shoes for “the baby” on Rodeo drive 10 pairs at a time in different sizes, sometimes we traveled to Malibu for a barbecue where television icons from my childhood were gathered about discussing their latest film or television project. There were moments that seemed surreal and I tried to blend in or disappear as best I could but I usually felt very uncomfortable. Never particularly starstruck, just awkward. Then one day we went to Carrie Fisher’s house.
I remember the first time we drove up Cold Water Canyon and turned to climb up the twisty hill that lead to her estate. Colorful Holiday lawn ornaments with phrases from “Twas the Night Before Christmas” lined the drive on that summer morning. I couldn’t imagine who lived there as everything about the place was so different from the impeccably manicured, gated nirvana where I then resided and searched daily for glimpses of something familiar or conventional. We parked the car and walked up to the door where we were greeted by a demure woman who invited us in. I began inconspicuously scanning the room for clues such as framed family photos, movie posters, awards with name plates or gigantic self portraits but I wasn’t seeing any of the typical items I came to depend on to orient me or prepare me for what to expect. A portrait of Teddy Roosevelt hung over the mantle. There were stuffed animals, the real kind and everything was bright, interesting and begging to be explored. There were stacks of books by the door, not assorted books but multiple copies of the same book wearing a brightly colored jacket. Suddenly, she appeared, fresh out of the shower wearing a robe, her hair still wet. She extended her hand as we were introduced and apologized for making us wait. She asked if we were hungry and offered pancakes as she escorted us to a back patio that ran the length of the house. I was first struck by how tiny she was (I am 5'9") and the fact that she would host any gathering of Hollywood moms in that non-coiffed state, immediately put me at ease. This was behavior I understood, the glimpse of bare humanity that I had been looking for to ease the gnawing feeling, I had slipped down the rabbit hole. 
We made the trip weekly to Carrie Fisher’s house that summer for playgroups that she hosted. It was a respite in a routine that was fraught with a constant barrage of chefs being fired, measuring bath water temperature to the precise degree and impromptu requests to dress up “the baby” and parade her in front of dinner party guests at any hour of the day or night. In stark contrast, Carrie Fisher sat on the floor next to me, her chin perched on her knees and asked my opinion on things like music lessons and optimal toddler nutrition. She asked about how my mom did things and if I went to church as a child. She talked openly about normal things like her mother judging her choice in cribs or her father’s most recent visit and while, yes, there was a life size Princess Leia cut out in her court yard, she never treated anyone like they were invisible or any less important than she was. I can’t express how rare that was there or any place. There was an ease in the way she interacted with her daughter that was consistent to what I knew growing up but that I hadn’t witnessed in awhile. The world didn’t end if there was a scrape or scuffle and she beamed as she watched Billie play, oblivious to the frivolous gossip being strewn about by the other Hollywood moms. Of all the people I met in Hollywood, she had the pedigree to be the most pretentious and dismissive but she was exactly the opposite. She seemed curious about how things were done outside of what she knew directly and didn’t assume a life of privilege meant she had all the answers. She was real, flawed and didn’t seem to have the slightest interest in wasting energy on a facade of anything to the contrary. I looked forward to this weekly escape as it was a kind of life line to something normal and good that I saw as sorely lacking in most everything else I encountered. I imagine that’s what many others loved about her too, the realness and vulnerability. 
The stacks of books, I would learn, were copies of “Surrender the Pink.” She signed one for me and I have it to this day. She will live on as an icon, celebrated author, crusader and much more to those who were closest to her. To me, she was consistently kind when I was trying to feel okay in what seemed like a foreign land. This may seem a small accomplishment in comparison to all she is rightfully celebrated for but it meant the world to me at the time. She was a class act and she will be missed.